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TREATING LYMPHEDEMA

What It Is, How to Prevent It, and How to Treat It
A major long-term complication is swelling of the arm—lymphedema—which can result from removal of the lymph nodes. It can be so slight that you notice it only because your rings begin to feel too tight on your fingers, or so severe that your arm becomes huge, even elephantine. It can be temporary or permanent. It can set in immediately or years after your operation.

What causes it? Basically, lymphedema is a plumbing problem. Normally the lymph fluid is carried through the lymph vessels, passes through the lymph nodes, and is returned to the bloodstream near the heart. The lymph nodes act like a strainer, removing foreign material and bacteria. So if you have surgery in the area and it scars over, some of the holes are blocked and the drainage is affected. The fluid doesn't drain out as well as it needs to, and everything backs up and swells. Protein leaks into the tissue and then scars, causing the condition to become chronic.



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This used to be much more common, because more extensive surgery was done, and it has been a serious problem for many women. The current use of sentinel node biopsy promises to decrease women's chances of getting lymphedema. Initial studies show that women who underwent sentinel node biopsy had lymphedema 2–6 percent of the time, compared to 17–34 percent for full axillary dissection.

It is important to try and prevent lymphedema. You should try to avoid significant trauma to the involved arm, including having blood drawn or having a blood pressure cuff placed on the arm. Probably the most important prevention is avoiding heavy lifting with your arm hanging down for a period of time, such as when you carry a suitcase, briefcase, or computer bag. Try to get your groceries delivered instead of carrying them yourself. If that's not feasible, get one of those little grocery carts and wheel them home. Also, be sure to use suitcases with wheels when you travel.

Although there is no cure for lymphedema, we can reduce the swelling and maintain the reduction. Treatment by physical therapists and others trained in lymphedema treatment is the best way to reduce arm swelling.

The treatment most commonly recommended is called complete decongestive therapy. It involves four steps: skin and nail care, manual lymph drainage, compression therapy using bandages, and decongestive exercises.

The treatment is conducted in two phases. The first phase is an attempt to mobilize the accumulated protein-rich fluid and to start to break up the chronic scarring. This phase is intense and can last four weeks, with treatments performed twice a day, five days a week. The next phase immediately follows and includes compression garments and bandages at night.

Other therapies include elevating your arm to help reduce some of the swelling. Physical therapy and exercise can help in early cases. Also, there are long support gloves available which, while unaesthetic, can help reduce the swelling.

The National Lymphedema Network can help you find resources, information, and support as well as refer you to a lymphedema treatment center or a physical therapist trained in complete decongestive therapy.

It is best to act right away, as soon as you notice that even a small amount of swelling has occurred. Don't wait until your arm is severely swollen to seek help.